The Autism & Grief Project is a new online platform designed to help adults with autism navigate and cope with the complexities of grief arising from both death and non-death losses. Alex LaMorie, A.A.S is a member of the project's Advisory Board and brings his lived experience with both autism and grief to this work. Dr. Kenneth J. Doka, PhD, MDiv, brings years of both professional and personal grief knowledge to his role on the project's Development Team. The Autism & Grief Project is unique - just as grief and autism are unique - and the site provides information not only for adults with autism who are grieving, but also the people who are supporting them.
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Alex D. LaMorie, A.A.S is an undergraduate student at the University of Maryland Global Campus and autism advocate. Alex's expressive grief artwork was recently featured in the textbook Superhero Grief: The Transformative Power of Loss (2021, Routledge). He serves as an advisor on the Hospice Foundation of America's Autism & Grief Project. In his spare time, he loves movies and TV shows as well as traveling to Comic Con and Anime conventions with his older sister. Alex also loves creative writing and spending time with his New York family so he can eat the world's best pizza and bagels!
Kenneth J. Doka, PhD, MDiv, is Senior Vice President of Grief Programs at Hospice Foundation of America (HFA) and recipient of the 2019 Lifetime Achievement Award from the Association for Death Education and Counseling. He serves as editor of HFA’s Living with Grief® book series and its Journeys bereavement newsletter. He is a prolific author, editor, and lecturer; past president of the Association for Death Education and Counseling (ADEC); and a member and past chair of the International Work Group on Death, Dying, and Bereavement (IWG). In 2018, the IWG presented Doka with the Herman Feifel Award for outstanding achievement in thanatology. He received an award for Outstanding Contributions in the Field of Death Education from ADEC in 1998. Doka is an ordained Lutheran minister and a licensed mental health counselor in the state of New York.
This episode is the second in our 2024 three-part series highlighting the voices of communities who have historically been underrepresented in the grief world. The series is part of an ongoing collaboration between Dougy Center and The New York Life Foundation. We are deeply grateful for New York Life Foundation's tireless support and advocacy for children and teens who are grieving.
Have you ever heard someone’s voice in your head and suddenly you're transported to a time and place when you were with them? This phenomenon is what Lissa Soep explores in Other People’s Words: Friendship, Loss, and the Conversations That Never End, her book about the intimacy of friendship and how words and language keep people with us, even after they die. After the deaths of her friends, Jonnie and Christine, Lissa found comfort in this idea of them living on through their words.
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Lissa Soep is a senior editor for audio at Vox Media and special projects producer and senior scholar-in-residence at YR Media. She has a PhD from Stanford, where she first started writing about Bakhtin.
Cristina Chipriano, LCSW, Dougy Center's Director of Equity & Community Outreach and Melinda Avila, MSW, CEO of OYEN Emotional Wellness Center, are committed to changing the landscape of grief support for Latino families. They bring personal and professional grief experiences to the work of ensuring that every Latino family has access to dual language grief support that honors their cultural values.
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This episode is the first in our 2024 three-part series highlighting the voices of communities who have historically been underrepresented in the grief world. The series is part of an ongoing collaboration between Dougy Center and The New York Life Foundation. We are deeply grateful for New York Life Foundation's tireless support and advocacy for children and teens who are grieving.
We cannot separate grief from the context in which it occurs. This is true for Nicole Chung whose adopted parents died just two years apart in 2018 and 2020. The world of 2018 was very different than that of 2020. In 2018, Nicole and her mother could grieve for her father, together and in person. In 2020, Nicole was on the other side of the country, grieving for her mother in isolation during the early days of the pandemic. The other context that played a role in her parents' lives and their deaths is the structural inequality that exists in the U.S. economy and end of life care. Nicole chronicles all of this in her new memoir, A Living Remedy.
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Nicole Chung’s A Living Remedy was named a Notable Book of 2023 by The New York Times and a Best Book of the Year by over a dozen outlets, including Time, USA Today, Harper's Bazaar, Esquire, Electric Literature, and TODAY. Her 2018 debut, the national bestseller All You Can Ever Know, was a finalist for the National Book Critics Circle Award, a semifinalist for the PEN Open Book Award, a Barnes & Noble Discover Great New Writers selection, and an Indies Choice Honor Book.
Chung’s writing has appeared in The New York Times Magazine, The Atlantic, Time, The Guardian, GQ, Slate, Vulture, and many other publications. Previously, she was digital editorial director at the independent publisher Catapult, where she helped lead its magazine to two National Magazine Awards; before that, she was the managing editor of The Toast and an editor at Hyphen magazine. In 2021, she was named to the Good Morning America AAPI Inspiration List honoring those “making Asian American history right now.” Born and raised in the Pacific Northwest, she now lives in the Washington, DC area.